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MPSG PD News








NEWS/INFORMATION





                                                                                   


  ......and Announcements of Interest


Parkinson's Helplines

The Parkinson's Foundation offers a hotline staffed by specialists, if you have questions about your PD .


PF Helpline 1.800.4PD.INFO (473-4636)

http://www.parkinson.org/find-help/helpline


Parkinson's "Aware In Care" Hospital Bag

The Parkinson's Foundation offers an Aware in Care bag so you are "hospital ready." PD meds and their administration can be a challenge when admitted to a hospital. This kit helps you be prepared. The kit includes a PD Alert bracelet.

https://secure3.convio.net/prkorg/site/Ecommerce/1326756855?VIEW_PRODUCT=true&product_id=1361&store_id=2162

Local Central Coast Case Management and Equipment Reuse Program

Offered free to families with Parkinson's, Case Management services can address the challenges of every day living to improve a PWP's quality of life. The equipment reuse program includes lending of equipment  as available: canes, walkers, shower chairs, benches, toilet seats, wheelchairs, scooters, and power chairs. Contact the Central Coast Quality of Life Project at (831) 330-9091or www.MSQLP.org


Home Safety Tour Checklist

From the Parkinsons Foundation 

http://www.parkinson.org/sites/default/files/Home%20Safety%20Tour.pdf



Do You Have PD or a Parkinsonism?
http://health.usnews.com/health-news/patient-advice/articles/2014/10/27/do-you-have-parkinsons-disease-or-a-parkinsonism


Would You Like to Support Parkinson's Research?
Participate in a clinical trial to help PD research. This trial finder matches you to trails you can help with.
https://www.michaeljfox.org/page.html?Find-a-Trial​

Resources for Poles

Jayah Paley at www.PolesForMobility.com is an excellent resource for PWP trying pole walking. Pole Walking is an excellent activity for those with PD. 

Urban Poling Accelerators makes ACTIVATOR poles that were designed by a therapist.

EXERSTRIDER walking poles by Tom Rutlin are designed for fitness walking.


The Ten Signs of Parkinson's

http://www.parkinson.org/10signs


​Michael J Fox Foundation Hosts Online Webinars on Parkinson's Research

MJFF offers free live webinars on the third Thursday of every month at 9am PT. These webinars cover various aspects of living with PD and resources to keep you informed about the latest research. Archived recordings of previous webinars are offered on-demand.

https://www.michaeljfox.org/page.html?hot-topics-webinar-series

 

Latest News From the European Parkinson's Community
http://www.epda.eu.com/en/news/

Choosing a PD Doctor by Dr. Melanie Brandabur
http://parkinsonswomen.com/2013/06/01/choosing-a-pd-doctor/

Michael J Fox Foundation Summarizes PD Med and Supplement Therapies in Trial
https://www.michaeljfox.org/

Everything You Wanted to Know about Parkinson's Meds!
https://secure3.convio.net/prkorg/site/Ecommerce/317020561?VIEW_PRODUCT=true&product_id=1063&store_id=2162

Practice SPEAKING UP:
The Northwest Parkinson's Foundation offers a free Apple App to practice voice amplitude
https://itunes.apple.com/us/app/speak-up-for-parkinsons/id78411


Exercise and PD


Exercise has neuroprotective effects for PWP. Exercise can help manage symptoms and may slow the progression of PD. The best exercise is the one you are committed to doing on a consistent basis. Dancing, boxing, pole walking, tai chi, and water aquatics all have their adherents. Most important is what YOU will do on a consistent basis. 

The benefits of exercise include:

  • Reduced motor symptoms, improving bradykinesia, and postural instability
  • Enhances the efficacy of levodopa therapy
  • Improves heart and lung capacity
  • Improves endurance
  • Improves gait disturbances
  • Improves cognitive function
  • Improves quality of life


Monterey Exercise Opportunities 
Many thanks to Steve McGowan for organizing this information and to Jeanine Yip and Bruce Belknap for their input


Exercise Classes


CCQLP Aquatics 
Monterey Sports Center
Sign up at CCQLP
Monday and Wednesdays  12-1
https://www.msqlp.org/monterey-ms-parkinsons-services-water-aerobics.html

CCQLP's Adaptive Yoga Program 
Monterey Sports Center
Sign up at CCQLP (See above)
Fridays 1:30 PM-2:30PM

Boxing for Balance
CHOMP
https://www.chomp.org/your-health/classes-events/event-search-results-detail/?eventId=8783c836-aec2-e811-a2c9-001dd8b71cdd#Description,.W-yw8-hKhPY


Adaptive PE
MPC
https://www.mpc.edu/academics/academic-divisions/physical-education/adapted-physical-education-adpe 

Peninsula Pilates Project Parkinsons
The Peninsula Pilates Project offers a 4 week "Pilates for Parkinson's" class free of charge. Classes take place at Pilates Monterey, 533 Hartnell Street, Monterey. 831.521.4288

https://www.peninsulapilatesproject.org


POP (Maria Belluromi)
TBA


Water Tai Chi 
Ai Chi with Eleanor 
Monterey Sports Center 
Fridays 11:15-12:00
https://www.monterey.org/sportscenter/Group-Exercise/Class-Descriptions/evr/44/ai-chi-with-eleanor

Online Exercise for PD 


Yoga
Yoga Designed for People with Parkinson’s 
https://nwpf.org/participate/events/?location=online

Dancing for PD
Mark Morris Dance Studio (Free)
http://capture.nbs-enb.ca/27/page/Home.aspx

Flexibility Exercise Video
https://www.youtube.com/watch?v=7CFLm1SL5EU

Should Your  PD Exercise be High-Intensity?
https://www.michaeljfox.org/foundation/news-detail.php?exercising-with-parkinson-disease-should-it-be-high-intensity​

Balance Exercises Video: 
https://www.youtube.com/watch?v=wkDiOCIX_xA&t=54s


Informational PD Exercise Articles, Videos, and Research


Hydrotherapy Improves Balance and Mobility 

https://parkinsonsnewstoday.com/2019/03/21/hydrotherapy-improves-balance-mobility-in-parkinsons-patients-study-reports/


The Role of Exercise with Parkinsonʼs 
https://parkinsonsdisease.net/treatment/exercise/


The Effects of Physical Activity in Parkinson’s Disease
http://content.iospress.com/articles/journal-of-parkinsons-disease/jpd160790

PWR! Exercise for PD, by Dr. Becky Farley
https://www.youtube.com/user/exercise4brainchange

Personal Blog/testimony of “LSVT BIG” exercises and helpful links
http://parkinsonsand5htp.blogspot.com/search?q=BIG

Intense Therapy Helps People with Parkinson`s Disease
https://www.youtube.com/watch?v=xSqVJouJcuw

The LSVT BIG exercise treatment program for PD
https://www.youtube.com/watch?v=nPmPCa1H3hU


Brief intro to BIG exercises presented by Southern Indiana Rehab Hospital
https://www.youtube.com/watch?v=_taLXUTrVy8

HIIT exercise websites & videos for PD:

HIIT improves psychomotor function in PD 
http://www.mdsabstracts.org/abstract/high-intensity-interval-training-improves-psychomotor-function-in-individuals-with-parkinsons-disease/

Novel, high-intensity PD exercise prescription
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4073951/











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